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What we do









About the Hermansky-Pudlak Syndrome Network UK

Who we are


The Hermansky-Pudlak Syndrome Network UK, or HPS Network UK, was set up during the summer of 2010.  We are a not for profit support and advocacy group staffed by volunteers.  We are affiliated to the US based HPS Network Inc.  We are not doctors or healthcare professionals.  For the most part we are people directly affected  by HPS.

Logo for the Hermansky-Pudlak Syndrome Network UK.