This website was created to provide information about Hermansky-Pudlak Syndrome and the HPS Network UK.  It is not intended as medical advice.  It forms part of the outreach and awareness raising carried out by the HPS Network UK.

This website is intended for a mixed audience including:

HPS can be a ‘scary’ condition and some of the symptoms can have serious long term health implications.  Some of the information on this website may be upsetting to some people.  Our intention is to provide information that may prove useful  in the spirit that ‘knowledge equals power’ and might enable individuals and families to be advocates either for themselves or their loved ones.  

Please note:

The information displayed on this website is not intended to and does not constitute medical or other advice.   Readers are warned not to take any action with regard or otherwise based on the information on this website without first consulting their doctor(s).

About the website of the HPS Network UK